Riding with Alzheimer’s

Bicycling.com published an article last week called, “Alzheimer’s Couldn’t Stop My Father From Riding.” While this title sounds upbeat, the article was actually about how the writer’s father, who suffered from Alzheimer’s, would ride his bike nearly every day and often get lost and not return for hours. He would end up at a stranger’s home, get picked up by police, or, one time, a stranger picked him up and drove him around for 3 hours until he recognized where he was and could get home.

This article really got me thinking about what can happen when an avid cyclist, like the father in the story, refuses to stop riding. We think a lot about how to stop a person with dementia from driving, but this is the first time I’ve really been called on to think about how to handle a loved one who insists on riding 60-100 miles in a demented state.

My husband and I talked about it and he would be much like the father in the article – no matter how many times I tried to hide his bike, he would find it and insist on riding. Would I really be able (or want) to stop him? Of course I would not want him to get hurt, but how could I refuse him the one activity that would bring him joy?

It is painful to think about, and it just reinforces our decision to do everything possible to avoid dementia, including giving up sweets, processed foods, and other harmful carbs.

And now…pneumonia

I had a wonderful Memorial Weekend with my mom visiting.  I rode the trainer each day, did my achilles exercises, and worked on core strength and upper body strength. We picked up Jonathan and our friend Matt after they tackled Mt. Evans on Sunday. We saw the new Star Wars movie, “Solo” on Monday night. It was a great weekend. And then everything went black.

I woke up Tuesday morning knowing something was seriously wrong. I fought a fever all night, along with a splitting headache and pretty serious back ache. I literally could not get out of bed. I’d been dealing with the back pain for about 5 days, but it wasn’t anything serious, just more of an annoyance. And other than feeling like I was breathing harder than usual on the trainer, I had felt good exercising the prior days.

All day Tuesday my fever soared and my back ache continued. On Wednesday morning we went to urgent care, with me thinking I had a kidney infection. They ran tests for a kidney infection and the flu, and both came up negative. The Dr. then wanted to do chest xrays to get a closer look at my lungs, as my oxygen numbers when I came in were lower than they should have been, and I was running a 102.8 degree fever.

I was shocked to learn that I had pneumonia. I racked my brain trying to think of how I could have contracted it. The last few weeks have been particularly stressful at work and I wasn’t sleeping well, but I was still exercising, getting accupuncture treatments, taking my vitamins…and still it managed to get to me.

I spent the next 3 days in bed, and now I’m taking it easy trying to recover. But it has prompted me to learn more about pneumonia, and, in particular, whether I am more susceptible to getting it in the future now that I’ve had it once. Unfortunately, I cannot find anything definitive on the question of whether I’m more susceptible now. There are a few sites that just say you are more likely to contract it again, but they don’t say why.

So I decided to focus on how to avoid getting pneumonia in the future, which led to me to an interesting article which suggests that our bodies may produce protective cells that actually prevent us from a second episode of pneumonia. The article, “Your Lungs Aren’t the Same After a Battle With Pneumonia” is based on a study done on mice. The mice were first infected with a type of bacterial pneumonia, with a control group that was not infected. After recovery, the mice were infected with a more serious strain of pneumonia.

The mice who were previously infected fared far better than the control group who had not been previously infected. All of the control group mice died, while only 10% of the previously infected mice died. The previously infected mice had a population of white blood cells called memory T cells in the lobe where the previous infection occurred. The memory T cells protected that lobe from the second infection.

The authors of the study believe that these memory T cells could be used in human vaccines to provide protection against lung infection, without having to have pneumonia first. I hope they are right.

For now, I’m focused on finding ways to speed up my recovery and prevent future infections just in case the T cell thing doesn’t work out or become available in my lifetime (knowing how quickly the FDA approves medicines that can actually help people). I did learn about a type of plant, mullein, whose leaves have healing and protective properties for lungs. Mullein acts as an expectorant and removes excess mucus from the lungs while soothing the membranes. I’ve already found it on Amazon, but also hoping to find it at our local health food store as well. Here’s an  article discussing this “weed.” I just hope it tastes good enough to choke down, as I plan to drink gallons of it over my lifetime.

This is yet another setback, but I’m trying to focus on what I can do with my extra time as I recover and not what I’m missing out on. I’ve already learned a lot from this experience, and hopefully others will benefit from this knowledge.